Anellah- 5 years old
Anellah is finishing up preschool and will begin Kindergarten next year! I'm was pretty surprised but oh-so-thankful when she was approved to have a nurse with her during the entire school day next year. I didn't even have to fight for this! She is enrolled at the school across the street which is a charter school and we are looking forward to walking to school together every day. She is on track academically and although she is still a bit behind in some areas like gross motor and speech, she can definitely keep up with her peers and loves school! She has started to read sight words and continues to love being read to.
Medically Anellah's liver continues to function "ok." Her labs have shown decline over the past couple years but the progression is slow. We do not have any plans for surgical treatment at this point as her liver continues to function at a "good enough" level and we have to wait until things are really bad to warrant surgery. She takes a medication for her liver three times/day and is a CHAMP at swallowing pills! Many adults could learn from her! The current risks are some elevated risk for illness (her white blood cells are low) and risk for bleeding (her platelets are low) but these don't affect her much on a day to day basis. For the first time I think I can finally say that her diabetes is "well controlled." She has a continuous glucose monitor which is not entirely accurate and can be frustrating at times but, in the end, it has been very helpful in regulating her blood sugars. She is very good about being told she cannot have sweets or has to wait until later to have sweets (although we don't specifically tell her this is because of her diabetes, but rather tell her it is because that is what's healthy) and she is becoming quite adept at checking her blood sugar independently. Checking her blood sugar requires poking her finger and applying blood to a test strip in her meter, then calling out the number to Mom or Dad.
Anellah is my big helper...and she is actually helpful! Everyday when I tell her that quiet time is over she asks, "Can I wake Capper up now?" She runs upstairs and starts dancing for him or singing loudly or talking to him or tickling him or fixing him pretend food. It is such a joy for me to listen to and also a relief that it means he will wake up happy! She also helps with chores: folding laundry, putting away her laundry, cleaning up her toys, putting away her shoes, clearing the table, etc.
Capper - 2 years old
Capper is NOT a baby or even a toddler anymore, he is definitely a little boy. He also attends "preschool" three mornings/week for 3 hours at a time. He is very verbal although we don't necessarily understand everything he says. He is potty trained...for pee. Pooping is a different issue but it will come! I'm just happy he was able to get out of diapers before we have a new one in diapers! Capper wants to do everything his big sister does so he is pretty adept at doing things independently. He also gets rewarded by being given chores to do, although he is not quite to the point where his chores are actually helpful. He can pick up his toys, put away his shoes when we get home, and put the silverware away.