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Tuesday, December 30, 2014

Home!

We made it home yesterday evening. As with all hospital discharges, the process was slow and fast at the same time. Daniel, myself, and the girls drove straight home from the hospital in Spokane. Capper is still with Gram and Gramps at their cabin and will return home tomorrow. According to Gram he "misses Anellah but is being very good." Anellah misses him too but, thankfully, she doesn't seem too jealous of his time with Gram and Gramps and is enjoying our "girls only" day at home today. She has mostly returned to herself, she's still having a tiny bit of tummy trouble and doesn't have a very big appetite but has been happy that she has the OPTION of eating and has been cashing in on special requests such as rainbow pancakes for breakfast.

Making rainbow pancake batter, don't mind the chaos in the background!
I was able to have a brief conversation with Anellah's liver doctor in Seattle and had many questions answered although there are still so many unknowns. She can return to a normal diet and normal activity level when she feels up to those things. She will have another procedure next Friday at Seattle Children's Hospital to look at the bulging vessels again and treat a few more of them. She will stay in the hospital at least one night. After that procedure the liver doctors at Seattle will get together and discuss her case. They will determine what the best approach is, if she should have a surgery to relieve some pressure and "patch" the problem so that they can wait longer for a transplant or decide if a transplant is urgently needed. Of course I heard what I am used to hearing, "She is a very special case" because she doesn't just have liver failure, she also has diabetes and other issues along with being young. Her liver doctor said that it is better to wait until she is older to do the transplant (for a variety of reasons) if that is an option.

So we are back to "normal" except a few more appointments and the knowledge that this past week's incident could reoccur at any time. Thank you to every who has been praying for us during this time. We appreciate it!

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